Uniting people to create stronger communities, less suffering and more love
My Sister, Lexi
My sister, Lexi lost her life to a missed complication of her rare disease, Blau syndrome just before her 7th birthday. Despite her pain, Lexi chose every day to live her best life and through her courage, compassion and charismatic personality she inspired others to do the same. Lexi's love was contagious - it was impossible not to feel like the most amazing person when you were with her. It comforts me to know that Lexi continues to make a positive impact on the world, inspiring the people she loved, as well as those she never got the chance to meet. Do you wish for a world with less suffering? A world with more kindness, compassion and generosity? So did Lexi. As you join us in our quest to carry on Lexi’s legacy, this quest for a better world can also become your legacy too.
-Felix (age 11)
The Most Valuable Inheritance
At six-years-old Lexi didn’t leave behind wealth or possessions. What she gave us was far more valuable – an abundance of love, beautiful memories, life lessons that continue to guide us and inspiration for many projects that are changing the world today. Even in the hardest times, Lexi reminds us that there is always hope. Here she is, singing the words she lived by: "The sun will come out tomorrow."
The Best Gift
This is Lexi - vibrant, charismatic and full of love. With sparkling blue eyes, wild curls and a deep belly laugh, she lit up every room. She never asked for much; she was happiest simply being with her people and animals. In this video to Santa she says she is happy to take a break from presents. One of her favourite books was Goodnight Stories for Rebel Girls and even at six she was already a passionate advocate. Today Lexi continues to inspire us all to take action and build a kinder, better world.
PROJECTS INSPIRED BY LEXI
1,000,000+ acts of kindness inspired
$200,000+ raised for good causes
A Million Acts of Love
What began as Felix's mission to honour his sister Lexi has now inspired over one million acts of kindness around the world and has grown into a registered non-profit organization, granting young changemakers opportunities to start their own social impact projects.
We're not just dreaming of a better world—we're in the process of creating it, one act of love at a time.
Spread SomeLexi Love
Felix Townsin's 'Spread Some Lexi Love' campaign, grew into an unprecedented movement of compassion and kindness. What started with a modest aim of inspiring 100 acts of kindness swiftly captivated hearts around the world, smashing expectations by achieving over 4,000 acts of kindness. This wave of goodwill garnered attention from local news outlets and radio stations, eventually making its way onto the national stage.
When Felix was 5, he wrote Don’t Floss Your Toes, as a fundraiser for Blau syndrome (early onset sarcoidosis) and juvenile arthritis. At that time there was no foundation for Blau syndrome. So far Felix has raised more than $100,000 for Blau research.
The books are available online for $12.95 CDN.
Or donate $20 CDN to Cure BS and send us an email requesting a copy.
People will still like you if your socks don't match.
Don't lick your fingers - unless they are covered in chocolate.
Water your plants - they look better that way.
Give your grandparents lots of hugs
Lexi's Wish
Felix started the Lexi's Wish Campaign to raise awareness for Blau syndrome. His short film connected us with several new Blau families (there are only 200 reported in the world) and scientists around the world (three are now actively pursuing research for Blau syndrome). It is never too late to share this video and continue helping us raise awareness, and help connect us with others affected by Blau syndrome.
Once Upon a Gene - Stories of Courage
Felix was honoured to speak on Once Upon a Gene He shares about his sister, how she lived and how she died, and how she inspires him to be courageous. Every. Single. Day. He teaches us all to be courageous in our grief - not to hide from it, not to ignore it, but also not to let it weigh us down or stop us from finding moments of joy.
RARE HUMANS: Turning Hope into Action
In Lexi's honour, Cheryl-Lynn (Lexi's mom) created the film RARE HUMANS: Turning Hope into Action. The film shares Lexi's rare disease journey alongside 7 other incredibly inspiring rare disease families. This film highlights how close we are to cures for so many genetic diseases. We hope Lexi's story inspires others to turn hope into action. Please take 5 minutes watch the trailer. The full hour long documentary with Lexi's story can be viewed on youtube.
Lexi's Legacy Wins National Broadcasting Award
CTV News Vancouver Island's Adam Sawatsky won a national broadcasting award from one of Canada's most prestigious journalism organizations for his story, Lexi's Legacy. The story ended-up being shared around the world, shining a spotlight on an ultra-rare disease with little-to-no funding or research. Earlier this year, Sawatsky's short feature won the regional RTDNA award before competing and winning at the national level.
The Cure Blau Syndrome Foundation
One of Lexi’s wishes was to find a cure for Blau syndrome. We started the Cure Blau Syndrome Foundation with Lexi as our inspiration and original founder and we continue our efforts for those who are still fighting their battle. We are so grateful for all of our supporters and their donations and efforts to advance research for Blau syndrome. Thanks to this support, the Blau community has new sense of hope - as people worldwide raise funds and awareness so that they can have a brighter future.
